Fetal Alcohol Syndrome Community Resource Center
Fas Community Resource Center: Triumphant March
Read about John Kellerman, a man born with Fetal Alcohol Syndrome, who, despite being born with both brain and heart damage, not only survives but also earns his high school diploma. Read about the beginning of his life, his supportive...
Other
What Is Clubfoot?
This site answers general information questions including: What is clubfoot, what causes it? What are the symptoms? how can it be treated? and What can be expected after treatment
Other
Teratology Society Position Paper: Vitamin A
A short site about vitamin A and the harm it can cause an unborn baby. Warns mothers about taking too much during pregnancy or even shortly before. Difficult reading.
Other
Spina Bifida Association of the Deleware Valley
This is the site of an organization for Spina Bifida education and support in the Delaware Valley of Pennsylvania.
Other
Nichd: Spina Bifida
This site from the National Institute of Child Health and Human Development provides in-depth information about the birth defect, Spina Bifida.
Other
Overview: Birth Defects (Spanish)
An overview of causes, diagnosis and prevention of birth defects. Common types of defects are described.
National Institute on Drug Abuse
Nida: Survey Provides Data on Drug Use During Pregnancy
Read this fascinating article from NIDA with unbelievable statistics of women using drugs during pregnancy. See chart showing drug use during pregnancy among racial and ethnic groups.
Other
Cystic Fibrosis Foundation
Comprehensive information on CF from the Cystic Fibrosis Foundation.
Curated OER
Kids Health: Cystic Fibrosis
What is Cystic Fibrosis? What Causes it? How is it treated? All of these questions are answered in these articles. This site also provides recipes for kids with C.F. This is a great site if you want to learn more, or if you're just...
Other
State University of New York: Fetal Alcohol Syndrome
This site from Potsdam college contains interesting information on FAS. FAS is the leading cause of mental retardation in Western Civilization today. FAS is caused by exposure to alcohol during pregnancy. Read all about it here.
Curated OER
Kids Health: Cleft Lip and Cleft Palate
Cleft lip and cleft palate are birth defects. Find out how you get it, what doctors can do, and how to live with it in this article for kids from Kids Health.
Curated OER
Kids Health: Spina Bifida
Presented in question-and-answer format, this is a brief article on what spina bifida is. You'll learn what spina bifida is, what causes this disease, and what doctors can do to help those affected by it.
Curated OER
Kids Health: Cystic Fibrosis
Cystic Fibrosis affects the lungs and makes it difficult to breathe. In this article geared toward kids, learn what it is, the causes, how it is diagnosed and treated, and how to live with it.
Curated OER
Kids Health: Cerebral Palsy
Read this informative article from Kids Health to find out what cerebral palsy is, the different types, how it is treated, and learning to live with it.
American Academy of Family Physicians
Aafp: Practical Tips for Preventing a Sickle Cell Crisis
This article from the American Family Physician journal provides basic information about what sickle cell anemia is and some measures that can be used to control the pain.
Emory University
Sickle Cell Information Center
Resource is dedicated to providing the latest information on news and research on sickle cell.
Other
March of Dimes: Birth Defects & Other Health Condition
An overview of causes, diagnosis and prevention of birth defects. Common types of defects are described.
Other
Dr. Greene's House Calls: Trisomy 13
Doctor describes Trisomy 13 in layperson's terms. Explanations of chromosome 13 function, abnormalities resulting from trisomy, history of syndrome, and prenatal testing.
Other
Things to Know About Caring for an Anencephalic Child
A general list of ideas for caring for your anencephalic child. Also some good ideas for preserving their memory.
About Kids Health
About Kids Health: Cerebral Palsy
Presents a featured article on cerebral palsy including information on causes, types, treatment, and associated problems.
Center for Parent Information and Resources
Nichcy: Definition of Spina Bifida
This resource provides a factsheet on the types, characteristics, treatments, and educational implications of spina bifida.
Center for Parent Information and Resources
Nichcy: Definition of Spina Bifida
This fact sheet gives basic information on the types, characteristics, treatments, and educational implications of spina bifida.
Other
Taking Folic Acid Before You Get Pregnant
Information on taking Folic Acid before you get pregnant to prevent neural tube defects including spina bifida.
CommonLit
Common Lit: Book Pairings: "Wonder" by R. J. Palacio
Selected (8) reading passages (grades 5-10) to pair with "Wonder" by R. J. Palacio. Wonder is the story of Auggie, a 10-year-old boy who has Treacher Collins Syndrome, a condition that causes numerous physical deformities and...